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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Left ventricular diastolic dysfunction

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Cardiology › Left ventricular diastolic dysfunction › Reply To: Left ventricular diastolic dysfunction

July 14, 2012 at 2:02 pm #2610
Barbara
Participant

Just DX’d with left ventricular diastolic dysfunction. Add me to the list. Do any of you have issues with edema?

Issie

Hi, I’ve not been diagnosed with LVDD yet but have suspiscions of it. My chronic fatigue doctor has said this, when explaining the level of my mitchondrial dysfunction, “The heart of course requires a generous supply of energy and when this is impaired this can result in atypical chest pain and palpitations. Poor energy delivery to the heart will result in a low cardiac output”

I do have edema, constantly around the ankles, sometimes above my feet and my toes are always like little sausages. I used to have it up to halfway up my calves too but having worn support hose 24/7 for the past almost 8 years has helped this to subside. I do awaken with swollen hands though, it looks like I have boxing gloves on and it’s impossible to make a fist. This disperses as the morning goes on luckily.
Regards
Barbara
(UK)
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella (Oct 2002) Fully Blown Empty Sella (Oct 2004); Whiplash Associated Disorder (WAD); Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Vitamin D deficiency; Ehlers Danlos (EDS) type 111; and now Osteoarthritis! and oh, I forgot Arrhythmias – confirmed as runs of Bigeminy and Trigeminy.

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