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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Video is up about whether or not to treat your CCSVI

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Video is up about whether or not to treat your CCSVI › Reply To: Video is up about whether or not to treat your CCSVI

August 8, 2012 at 9:35 pm #2733
Dr. Diana
Keymaster

I had to take that video down to regroup, Hon. It seems that a lot of people thought that CCSVI equals “I must have angioplasty”. Yikes. Most of us deal with vascular inflammation that got us into this place to begin with, and many develop anti-phospholipid syndrome, deal with MTHFR gene, livido reticularis and other vascular issues. I am working on “work arounds” so that we don’t have to have angioplasty which may set us up for thromboembolism.
More information coming!
Knowledge is power — an fMRI or doppler (or an MRV) will tell you what you need to know. If you go doppler, be sure the operator has lots of experience, OK? But no matter what they find, nor how many people get some symptom improvement, we WILL have a better procedure to “fix” this. Hopefully, we won’t need to wait very long!

🙂 Diana

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