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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

August 26, 2012 at 8:53 pm #2812
Barbara
Participant

I would like to find out anything I could about pain in the back of your head that radiates down like that. I have no idea what is wrong with me except have MS and just diagnosed with dysautonomia and have the same long symptom list others do. Is dysautonomia ever trauma induced? over the last couple of years i have been developing more and more symptoms I thought was so crazy and am only now seeing how many others are having the same symptoms.
Thank You
Beth

Hi Beth,
My experience is that yes, trauma can cause it, I was fine until I bashed my head. I experienced the pain you are describing for 5 years before I was put into a Philadelphia collar and brace – such instant relief was amazing!

What it did was, it held my head in a better position, in relation to my neck, which allowed the cerebrospinal fluid (which bathes the brain and spine) to flow more freely. It also took the strain off my neck muscles, that was trying to hold my heavy head up, after the ligaments (that hold my head on) had been injured.

Did your MRI’s ever report low-lying cerebellar tonsils (hind brain, sometimes referred to as cerebellar ectopia)? It can trigger dysautonomia, by subtly pressing the brainstem, this can cause the feeling of nausea. If you also have a retroflex odontoid (peg-like bone in the top of your neck, that points backwards) nausea can be brought on by looking down (head in flexion), so try and avoid this movement and see if it eases.

The pain in your eye (which I get) could be caused by raised intracranial pressure (which I also have), I should ask to see a neuro-opthalmologist, so he can look more closely at what could be affecting your eye and try and address it.
Regards
Barbara
(UK)
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Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; GERD; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Mild Scoliosis; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!