NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?
Hi,
Deafness slowly cleared thank goodness!
I’m not sure what that vessel is, do we know? I know when you brush your teeth, although your head is down, for some it’s swivelled with your face forwards (if you’re checking in a mirror, for instance). That head down but face forwards position always increased my dizziness, so I avoided tasks that included this ‘pose’, things like looking into low cupboards.
I’m certain for many of us, with having less than perfect supporting neck structures, specific head positions play a part in our demise. I can’t help noticing that your vessel appears to suddenly stop at the bottom, I know it doesn’t, it’s obviously bending inwards to go behind the bone. Maybe it’s that, above the bone the vessel is being pushed outwards.
I know my neck structures can expand (inflammation from the mast cells maybe? yet to find out). I know this because I have a ‘headmaster’ collar that I wear for a while, when I’m too hot in my Philadelphia collar but then, after I’ve cooled down, when I put my Philadelphia collar back on, I can’t fasten it in the usual place, it’s like my neck has expanded. I have to tighten it up gradually.
Have you been tested for mast cell activation, or are you on the mast cell treatment ?
Regards
Barbara
(UK)