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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

August 30, 2012 at 6:57 am #2822
Barbara
Participant

Hi,
Deafness slowly cleared thank goodness!

I’m not sure what that vessel is, do we know? I know when you brush your teeth, although your head is down, for some it’s swivelled with your face forwards (if you’re checking in a mirror, for instance). That head down but face forwards position always increased my dizziness, so I avoided tasks that included this ‘pose’, things like looking into low cupboards.

I’m certain for many of us, with having less than perfect supporting neck structures, specific head positions play a part in our demise. I can’t help noticing that your vessel appears to suddenly stop at the bottom, I know it doesn’t, it’s obviously bending inwards to go behind the bone. Maybe it’s that, above the bone the vessel is being pushed outwards.

I know my neck structures can expand (inflammation from the mast cells maybe? yet to find out). I know this because I have a ‘headmaster’ collar that I wear for a while, when I’m too hot in my Philadelphia collar but then, after I’ve cooled down, when I put my Philadelphia collar back on, I can’t fasten it in the usual place, it’s like my neck has expanded. I have to tighten it up gradually.

Have you been tested for mast cell activation, or are you on the mast cell treatment ?
Regards
Barbara
(UK)

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