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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

September 16, 2012 at 12:56 pm #2930
EDSlife
Participant

I live in Memphis,TN. My daughter and I were diagnosed by a genetisit at Vanderbilt three years ago. Most doctors here arent familiar with EDS or know enough that they dont want to see you! Still havent found a rhuemy for myself. Wondering if we should just make the trip to Baltimore for both of us and get as much info as I can! My four year old has a good cardiologist that deals with EDS. Her rhuemy is pretty amazing as well. I have had much better luck with the pediatric side than adult and even that is minimal. How do they test for POTS?