NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?
I live in Memphis,TN. My daughter and I were diagnosed by a genetisit at Vanderbilt three years ago. Most doctors here arent familiar with EDS or know enough that they dont want to see you! Still havent found a rhuemy for myself. Wondering if we should just make the trip to Baltimore for both of us and get as much info as I can! My four year old has a good cardiologist that deals with EDS. Her rhuemy is pretty amazing as well. I have had much better luck with the pediatric side than adult and even that is minimal. How do they test for POTS?