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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Any advice??

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Any advice?? › Reply To: Any advice??

October 22, 2012 at 11:44 pm #3068
abbilou
Participant

I am so sorry the Doctor blew her off today. Most everyone here and in the POTS and EDS community has been blown off time and time again. It took us over a year to get a proper diagnosis for our Daugther once she reached the bedridden aspect of untreated POTS. A leading Ped Cardiologist totally blew us off. It is very difficult to go through the illness and then have the added disappointment and worry that no one will help. I am very sorry your family is experiencing it also.

What other symptoms does she have besides fainting? What city are you in? (someone may have a doctor suggestion). Do you know what her pulse rate and BP are while at rest, then after sitting and then again after standing up?

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