NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › excruiating ear pain,vertigo,loss of balance,and help Dr.Diana › Reply To: excruiating ear pain,vertigo,loss of balance,and help Dr.Diana
Hi, MANY of us have “low-lying cerebellar tonsils” (otherwise referred to as Cerebellar Ectopia, or Chiari 0) and on that basis I’d say, if they look at it more closely, it’s NOT NORMAL!
I wonder if all those “healthy controls” who have this “normal” low-lying cerebellar tonsils “varient” are just in the early stages of this condition and relatively asymptomatic (i.e. no symptoms that a normal healthy person wouldn’t shrug off, as unimportant).
Many sufferers have been able to live a “normal” life relatively asymptomatic for some part, then something comes along that tips us over the edge and the symptoms are no longer of a tolerable level.
Whiplash sufferers for instance. I just think it’s odd that the percentage of whiplash sufferers who progress to a more serious condition, is similar to the percentage of the whole population who suffer from EDS in general. I just think the EDS condition makes us more susceptable to injury, be it from a head/neck trauma, or from a virus, either of which would trigger cytokines and the like, to proliferate.
I myself was 48 years old when I started to become troubled by the condition, following a bad backwards fall that inflicted a head and neck trauma – before that I’d been akin to superwoman, loads of drive, energy, stamina, enthusiasm and brainpower.
Just as a point of interest, my swallowing problems were worsened when my brainstem was being stretched due to my head going too far into flexion, due to cranio cervical instability. Is your daughter’s level of flexibility bad enough to be contributing to instability at the cranio-cervical junction ? (don’t rely on the medical fraternity to spot it, there are many ‘methods’ of testing for this and out of the dozen or so that I tried, only one or two methods showed it up!)
If she does have it, or if you think she might, I would suggest she try a firm Philadelphia Collar for a while, it’s the best one I’ve found that holds the head in a better relationship to the neck, so that tension isn’t as easy to apply to the brainstem. It made quite a difference to several symptoms for me.
I have to avoid hot spicy foods too because this causes a swelling of the throat for me (instantly!) Another thing which caused throat swelling for me was looking from side to side whilst my head was in flexion, for example looking down whilst flicking through a magasine.