The doctor says she has orthostatic intolerance while the cardiologist says it’s hyperad. pots. So,it’s been a mixed diagnosis. Then the EDS diagnosis came 3 years after. When she was tested for mast cell she was not tested lying down. They did the blood work just like they did any other blood work. She does take xanax and she began this almost by accident. He gave it to her for a dental appointment and I found out it helped her to relax and “feel better” so I asked if she could take it everyday. So now she takes it all of the time.
We see him tomorrow and I’m going to ask him about the Diamox but I can’t make him prescribe it. I just know “something “needs to be done because she is miserable.