@Barbara–thank you for your reply. Although her MRI says normal those words just keep haunting me. I have not heard from her doctor yet but when I do I plan to bring this up and I’m trying to arm myself with evidence so I can show them that there are people that have issues with low-lying and chiari 0. I do believe something is terribly wrong. It’s been 7 days of headaches and its located in the back of her head near the base of her base of her skull. She has all the other problems too that I mentioned. I just wish the doctors would listen to me. I’m so frustrated with the entire medical profession right now. Does my daughter have to be dead either by suicide due to the pain or by her health before they listen???
I’d just like to say that my severe headache was at the back of my head. I’d had to endure it every day (plus neckache that went down to my shoulder) FOR 5 YEARS!! Then I was issued with a Philadelphia Collar and Body Brace and the pain MARKEDLY reduced overnight (from a 9/10 to a 3/10 – yey!!). I still wear the Philadelphia collar (no-longer need the body brace) and I’ve never been troubled with that head/neck/shoulder pain since.
What this device did, was to hold my head in good relationship to the top of my neck therefore allowing the otherwise intermittently restricted flow, of cerebro-spinal fluid (CSF), to flow more freely, reducing the level of pressure in my head, which made a HUGE difference (improvement) to several of my symptoms.
Regards
Barbara
(UK)