NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › excruiating ear pain,vertigo,loss of balance,and help Dr.Diana › Reply To: excruiating ear pain,vertigo,loss of balance,and help Dr.Diana
The doctor says she has orthostatic intolerance while the cardiologist says it’s hyperad. pots. So,it’s been a mixed diagnosis. Then the EDS diagnosis came 3 years after. When she was tested for mast cell she was not tested lying down. They did the blood work just like they did any other blood work. She does take xanax and she began this almost by accident. He gave it to her for a dental appointment and I found out it helped her to relax and “feel better” so I asked if she could take it everyday. So now she takes it all of the time.
We see him tomorrow and I’m going to ask him about the Diamox but I can’t make him prescribe it. I just know “something “needs to be done because she is miserable.
Orthostatic intolerance is simply a description, it means that something is stopping your daughter from standing up for any length of time, it could be caused by several things.
The cardiologist says it’s Hyperadrenergic POTS, so this is the diagnosis that sums up the medical signs and describes what exactly is happening in your daughters case, so it’s not contradictory, it’s just further defining the orthostatic intolerance, so to speak.
EDS is a somehow related condition, probably making us more susceptible to suffering these (and several other) conditions. So, if you like, your daughters malaise (like many of ours) will probably turn out to be a combination of several different diagnoses (all correct), many of which crop up time and time again, amongst those who suffer from this disorder. That’s why Dr Diana’s Theory makes such sense to me.
The good news is that things are now moving out there in the medical world, after many years of stagnation, that will hopefully change our lives for the better.