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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Anyone have both MS and EDS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Anyone have both MS and EDS? › Reply To: Anyone have both MS and EDS?

June 25, 2011 at 6:49 am #1259
bearcat
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big hug for you beachsandangel!

diana- if you are ‘impatient’ to try and find more peops with both MS and EDS dx- I could send you links to other forums where I have encountered peops with both dxes- they are quite rare though… and there seem to also be peops with lupus&EDS;/ and families where one has EDS, another lupus…

and there are quite a few EDSers where MS has been suspected due to symptomology (even after EDS dx/and by EDS specialists)- but tests didnt show it-
and I so remember one post where apparently some EDSer’s myelin sheath was ‘mechanically’ damaged -due to wrongly moving bones literally rubbing it away… ?????… also bringing MS typical symptoms…
xxg

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