big hug for you beachsandangel!
diana- if you are ‘impatient’ to try and find more peops with both MS and EDS dx- I could send you links to other forums where I have encountered peops with both dxes- they are quite rare though… and there seem to also be peops with lupus&EDS;/ and families where one has EDS, another lupus…
and there are quite a few EDSers where MS has been suspected due to symptomology (even after EDS dx/and by EDS specialists)- but tests didnt show it-
and I so remember one post where apparently some EDSer’s myelin sheath was ‘mechanically’ damaged -due to wrongly moving bones literally rubbing it away… ?????… also bringing MS typical symptoms…
xxg