I mentioned Hughes, only becuase i had an online friend with EDS/POTS who had chronic migraine (aswell as other problmes) but she mentioned as i have so many headache issues too, try being tested for it. I put it to the bottom of my list as i pressumed that cant be me i have low blood volume.
Its strange but recently i had the best tests that are avaliable in the UK for blood volume, just had my Renin and Aldosterone checked as well as 24 hour urine metadrenalin and sodium. All were normal, which kind of means now i am not so sure i have low blood volume…..Its all so unpredicatable.
I think a blood test for Hughes Syndrom is well worth checking though. That could make sense with the IV saline, i would guesss that would have an effect on thinning the blood in a more dramatic way than just drinking salt water, else people would just do that. Off to the GP again…..