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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Newby – could do with picking your brains please

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Newby – could do with picking your brains please › Reply To: Newby – could do with picking your brains please

January 20, 2013 at 12:30 pm #3364
diamondcut
Participant

Not at all,
I appreciate the time you are giving explaining this.
The more i have read up on this at the weekend, the more i think this is whats going on with me. Especially now you have mentioned Chiari 0. I was surprised when they said i didnt have any signs of it because i had so many features, the whole reason they sent me to an ENT Dr before a nuero was because head and eye movement was the first and most prominant part to my problmes. I was house bound at that point as just couldnt move my eyes and head around!!They gave me some vestibular exercises which even my nuero said not to do, thank goodness, they would have made things worse with CCI! Obviuosly if they cant find inner ear trouble, obviOUs Chiair, it goes on to migraine. Theres you answer be happy with it!

Thats incredible about how Nueros were recruited from PSychiatrists here, quite funny as Amitriptyline was the very first drug they put me on around 6 years ago when they couldt find a thing wrong with me (missing the pots and eds totally) I am still on it to this day but have got it down to 10mg a day so it doesnt interfer with the pots. I dont really know if it helps any of my pain conditions anymore, i am a bit scared to totally come off it incase it was doing something.

I can imagine some of the reactions that you got from Drs just asking for your scans to study…… What was there reation when you told them all the thnigs they had spotted?

My collar should be here this week so i am very keen to see the out come!!
Thank you again for the explinantions of what could possibly be happening with me.

Kind regard

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