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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: When an MRI is not enough

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › When an MRI is not enough › Reply To: When an MRI is not enough

February 1, 2013 at 12:03 am #3383
Dr. Diana
Keymaster

I think a blood test for Hughes Syndrom is well worth checking though. That could make sense with the IV saline, i would guesss that would have an effect on thinning the blood in a more dramatic way than just drinking salt water, else people would just do that. Off to the GP again…..

Hi Diamondcut, I’m so disappointed in what it takes to get a diagnosis of Hughes…You must have had a clot AND positive results at least twice. Our blood thickening can change over time, so while waiting for a diagnosis, we could easily have a stroke. Jeez. Did you see my MTHFR video? I recommend a comprehensive panel for thrombotic risk. You can also be tested for the most common inherited blood thickening disorders (MTHFR gene, Factor 2, Factor V Leiden, etc). I highly recommend that! 😉

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