Just to add. I was lucky to fly business class over, and will do so on return, so the beds fold to close to horizontal. Good at head level, not so good at foot level…..but better than economy of course. I have to be thankful of this extra space. I am not sure if my head was in flexiion. Probably some of the time yes. Since finding this site and becoming aware of the symptoms and issues like this, I have become consciously aware of how much my head is actually in flexion. A lot!!! Of course I have spent a lot of time resting, lying on a hotel bed watching tv, head in flexion! I have had a few migraines whilst here, more more than at home, a few of these have been occipital, usually occurring with frontal pain. Nightmare. I need to watch this. Is the hydrocephalus and raised pressure a feature of dysautonomia, or related more to the various conditions accompanying it such as EDS or MS etc? I am still unsure if you can get dysautonomia idiopathically. POTS tends affect younger females doesn’t it. It’s interesting. I am already planning my raise awareness campaign lol!
Other thing was the LVDD. Is this diagnosed via an ECHO? Is the dysfunction responsible for the poor cerebral perfusion and hence syncopal episodes etc…. I am wondering who to ask to see when I get home (if I make it lol) as I m guessing my GP won’t have the foggiest. Is it the job for a cardiologist or neurologist, both?
Cheers, sorry for all the questions