Thanks for your replies ladies….
I see gp to get results of MRI on Wednesday so I will ask about temperature and get him to look in my ears. I do take my own most days, so OCD lol, and actually during the day it can range anywhere between 36-37.5 though this is with oral thermometer. It probably dips below 36 in the early hours, though that is normal I guess. Saying that i reckon i have more variation rhan most. Funnily enough I have taken my temp under my tongue on the left and right side and it is almost always different, either by .1 or .2 of a degree. Doctors are only interested in absolutes really, if I am not pyrexial then i am fine. Mind you as anything over 37 is considered a fever, I regularly have low grade fevers. But is that a variant of normal? Is it due to problems with the hypothalamus? Just don’t know.
I am playing detective a bit and trying to work out if I have developed a chronic illness like ME/fibromyalgia with significant dysautonomia, or whether I have an undiagnosed genetic disease. Or is it idiopathic!! Looking forward to seeing my gp’s blank face when I m back in the uk when I tell him I think I have developed a significant dysautonomia! When I mentioned it to the gp here in oz he mentioned the flight/flight response and panic! There certainly isn’t much knowledge out there.
I’m sure the answer will be yes, but sleep dysfunction, exacerbates all symptoms, but in particular the orthostatic intolerance?