• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Mm, could it be dysautonomia

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Mm, could it be dysautonomia › Reply To: Mm, could it be dysautonomia

February 11, 2013 at 1:33 am #3439
Henry40
Participant

Hi Barbara it is easy quite normal to lose appetite when you cross time zones, more likely the more zones you cross. I ate very small amount in Bangkok, but did drink yes. Slept quite a bit. My appetite had been on the slide through December, couldn’t see a trigger. I was eating less and continuing to do moderate exercise. a possible trigger I wonder? It was hot and humid in Bangkok but was there 24 hours and only spent an hour out if the hotel room. Problem was on arriving in Australia, but it was just a warm day that day, about 22 degrees, not like some of the hot ones I have experienced since.

I am still struggling to eat! Will have to force feed and if I can’t keep it down I can’t. I have lost about 8-9kg in 6 weeks, was weighed today. Sleeping so bad at the moment, the myoclonus really gets in the way. I drift off and just as I do the jerks wake me up. Not sure this is normal but it sucks! Probably the worst symptoms because without good sleep its impossible for dysautobomics to function. I am taking in a banana though and a multivitamin yes. I saw a different gp here today and he was well clueless. It felt like she didn’t understand the terminology! She concluded anxiety. She wondered why I had had so many scans. It is easier to get them here in oz though. I was presyncopal again in the waiting room. I might have to take a Valium tonight though if the lack of sleep continues…..unless the myojerks continue!!

Had MRI and head CT). Results in 2 days, with cd to bring home, so quick!

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020