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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Mm, could it be dysautonomia

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Mm, could it be dysautonomia › Reply To: Mm, could it be dysautonomia

February 11, 2013 at 6:33 pm #3440
Barbara
Participant

My myoclonic jerks (like an electric zap from head to toe) started within an hour of my accident (head and neck injury). I still have them albeit to a lesser degree (not as ‘intense’) more often at night but still get them through one limb or another during the day. They appear much much milder now though, 10+ years later and barely disturb me, if at all.

I think part of our problem is that we release too much adrenalin when something like this happens (yes the ‘fight or flight’ mechanism does overdo it somewhat). I can’t get to sleep for ages if a noisy car goes past – how daft’s that! When did your myoclonic jerks start ?
Regards
Barbara
(UK)

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