I’m glad you’re getting some sleep at last and the diarrhoea’s stopped. When we eat, blood is shunted away from our peripherals so the stomach gets a much richer supply. If you are going light-headed, maybe this could be one reason, though your brain should take priority in a normally functioning body. I think your intestines are helped by movement, so laying still won’t help in that respect. I don’t get much abdo pain, so I cannot relate to that. What have the doctors said about your progressive lack of appetite through December and the more recent guts issues?
Did you watch Dr Diana’s latest video on Magnesium ? I have read about this before and did try a supplement many years ago, when my heart was worse and it may have helped many aspects but, it did increase my arrhthmias at the time, so I put it to one side. I have more recently started having Epsom Salt baths to help supplement this. Your lack of nutritional intake, will have depleted your levels of many things, not the least magnesium, it may be worth having a ‘soak’ in epsom salts, as you’re not managing much orally (if you have the energy that is!)
The jerks have been the least of my worries and so have the twitches (fasciculations), although it did point to something ‘not right’ going on in my muscles. The depths of pain have been horrendous, though it’s much better managed now. I was a fit and active 48 year old when all this happened, working self-employed as a systems analyst during the day and property developing at evenings and weekends when I wasn’t out dancing the night away. I had strength and endless energy. I’ve always liked to be busy, I’m not one for sitting around doing nothing, so adapting to the consequences of all this has been a great shock to me!
I’m sorry, I’m not a great believer in psychology in the first place, all this airy-fairy “if this hadn’t have happened 30 years ago and that hadn’t have happened, etc” stuff, I can’t abide with it. I’d say, how come it’s not affected me for the last 30 years! I’m a Maths and Science type of person (the switch is either “on” or “off”, if you get my meaning). Everything has physical cause and effect, I want to know what happened in that accident that has caused this malfunction in my body, so I can effectively put it right and get on with my life. I won’t accept defeat until I draw my last breath. This is just a puzzle that needs solving – and I like puzzles.
Life was really great before my accident, I wouldn’t have changed a thing, then it happened (and no amount of dwelling on it could ever change that fact), nor will I ever accept that this is my ‘lot’, until I have checked every possibility, I believe in being pro-active. In the early days, when I was reporting new symptoms every few weeks, my then GP suggested I consult a psychologist (what an insult!) but there again it is the cheaper option from an NHS point of view – I think they call it ‘file 13’, or ‘the waste-basket diagnosis’! So, I agreed to an assessment just to prove it wasn’t psychological, sure enough my GP received a letter saying that they should be looking for physical causes – yeay!
I once had a consult at a regional pain clinic and the consultant told me that they could not offer any advice other than what I was already practising, so that was a bit of a waste of time. With regard to attending pain groups, I do go to one from time to time, when I can but I find it disheartening, when people are encouraged to accept that their ‘fatigue’ is psychological and there’s little to be done about how they are – when there’s plenty that can be done about it! We may not be able to achieve perfection but we can regain more than a little, I’ve certainly seen many improvements through better management.
Yes I’ve been to the extremes in anger, frustration and despair (often) with all that this condition brings but dwelling on it doesn’t help. It has stolen my physical ability, I will not let it steal my mind!
Regards
Barbara
(UK)