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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Mm, could it be dysautonomia

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Mm, could it be dysautonomia › Reply To: Mm, could it be dysautonomia

February 15, 2013 at 3:22 pm #3457
Barbara
Participant

Hi Barbara
Fascinating about your mitochondrial function. I never new there were tests that specific!! All the tests were abnormal then. So were you formally told that your general fatigue and impaired exercise tolerance were due to of mitochondrial function? Makes sense….. Is there nothing that they can do?

I’m having an autoimmune test (ANA) as a last blood test, to rule other causes. Funny GP today said yes to me saying it could be autonomic dysregulation. At last! He did say its something you need to sort when home! Cop out! Mind you when I told him I studied medicine some years back, his approach changed!

Richard

The Mitochondrial Function panel is a suite of tests that looks at the various aspects of producing (and recycling) energy, at cell level so to speak. I think it was devised around 2009, it’s a very unique test. Not all of my results were abnormal but, of the one’s that were, it could be determined where in the cycle things were going awry and therefore indicate what could be done, then Dr Sarah Myhill worked out a specific treatment plan. She’s very thorough, there’s loads of info on her website explaining what goes wrong within our bodies and what we can do to put it right.

I thought you had more than a smattering of medical knowledge based on your terminology (and quick grasp of the possibilities I suggested). Were your studies in any particular area of medicine? What did you do following your studies ? Do you have any doctor/consultant contacts who may be interested in taking up our cause on this side of the Atlantic?

Did your GP check your ear for infection (with you showing low grade fever) ? I dont know if the ANA will trap anything, mine (and my ‘anti-smooth muscle’ and my ‘RA’) all came back negative.
Regards
Barbara

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