Funny enough my CT/MRI reports both stated they could see evidence of my canal wall down procedure indicative of mastoidectomy, but also that soft tissue was in the ear cavity on superior aspect of tympanic membrane, with ossicular chain distortion. I can see this easily on the CT/MRI myself. However the report doesn’t say if the soft tissue is a result of the grafted membrane, or is infact some regrowth of cholesteatoma or residual disease. My guess is they will say it could be either, so a second, more exploratory surgery will be necessary. Was hoping to avoid, I know dysautonomics do not handle anaesthesia well (I was tachy and v nauseous after first surgery). Anyway one bridge at a time!! Anyway, its unlikely my symptoms are related to this in any way, unless fluid in the ear is causing some dizziness.
I’m just looking at what triggered your dysautonomia to suddenly render you so ill. I can’t help but think that infection is involved somewhere and could be ‘sorted’ with anti-biotics. In my book, something has substantially affected your intracranial pressure. There again, I suppose a blocked ear would only give you one mechanism by which to adjust to the change in pressure.
Regards
Barbara
(UK)