Hi Dr. Diana,
1st – thank you, plain and simple
2nd – In regards to MS & EDS in my family… I know that I’ll be sending your their information for the head-circumfrance EDS research as soon as I get it from the doctors.
3rd – I could contact you possibly another way, but while I’m as it, what kind of doctor is best suited to (1.) held address the appropriate medications to get my sinus mast cells to calm down, I’ve only had partial success on my own; and (2.) what type of specialist would be best for looking at my brain MRI in relation to the Driscoll theory (my first ever neurologist just had me get one done- and it is potentially interesting).
Hi Christi, 1st — thank you! 🙂 2nd — THANK YOU!!! 3rd — the best docs for mast cell disease that I’m aware of are Dr. Castells and Atkins (partners). If you check out tmsforacure.org you’ll see a conference they have coming up, too. I’ll be there FRONT AND CENTER. For looking at the MRI? This is TOUGH. Basically, any doctor who is open minded is a keeper. I had to work on my neuro for quite a while. Dr. Fraser Henderson (neurosurgeon in Baltimore/D.C.) is toying with it a bit. It’s almost easier just to try Diamox and see if you respond, we’ve found. Hang in, Sweetie!