NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Please help unsure about diagnoses and how to proceed › Reply To: Please help unsure about diagnoses and how to proceed
Wow, you have been through a lot. I am new to the site as well. I myself have not been diagnosed yet with EDS either and am waiting for an appointment in September for the Rheumatologist. I don’t have a lot of EDS knowledge, I am learning as I go, but some of the things you are going through caught my attention and so I thought I would throw some things out for you to think about.
Crohn’s can lead to vitamin b-12 deficiency, that in and of itself can cause a large number of neurological and autonomic symptoms that might be a good place to start and eliminate that as a possible cause of some of your symptoms. Your doctor can test for that. Even if it comes back normal from what I read they can be false normal and a more sensitive test may need to be done. You can get vitamin b-12 sublingual tabs that you melt under your tongue, trans-dermal patches, or injections.
I may be dealing with this from the PPI I have been taking for so long. I have started having a lot of weird symptoms that the doctor want to send me to a neurologist who specializes in Myasthenia Gravis, which is something else for you to look up as a lot of people Crohn’s can end up with Myasthenia Gravis too.
“Vitamin B-12 deficiency affects the nervous system, leading to a variety of symptoms. Sometimes, these may be apparent before symptoms related to the anemia. Neurological symptoms vary and may be nonspecific (meaning that these are symptoms that can be caused by a number of different conditions). Feelings of numbness, tingling, weakness, lack of coordination, clumsiness, impaired memory, and personality changes can all occur. Both sides of the body are usually affected, and the legs are typically more affected than the arms. A severe deficiency can result in more serious neurological symptoms, including severe weakness, spasticity, paraplegia, and fecal and urinary incontinence.
Symptoms of anemia are due to the reduced oxygen-carrying capacity of the blood. Shortness of breath, fatigue, dizziness, and pale skin can all occur with anemia. In anemia, the heart is placed under stress since it has to work harder to deliver enough oxygen to body tissues. This can result in heart murmurs, fast heartbeats, arrhythmias, an enlarged heart (cardiomegaly), or even heart failure. It is important to note that not all people who have vitamin B-12 deficiency and neurological symptoms will also have anemia.
A deficiency of vitamin B–12 can also alter the surface of the tongue, making it appear shiny or smooth.
Finally, sometimes pernicious anemia is diagnosed in a patient with no symptoms. In these cases, it is usually found incidentally when blood tests are ordered for another reason.”
http://www.b12patch.com/about-b12deficiency.html symptoms list
http://www.cdc.gov/ncbddd/b12/table1.html cdc symptoms list.
Seizures and b-12 deficiency.
I hope this information helps,