• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: EDS and IIH

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › EDS and IIH › Reply To: EDS and IIH

May 27, 2013 at 9:54 pm #3694
Dr. Diana
Keymaster

HI Huggy, This is sooooo tough. I don’t know anything about your history, of course, nor what type of shunts you have needed. Sometimes Diamox is not enough, or you have a form of hydrocephalus (non-communicating, for example) that requires surgery or a shunt. Some of us need cerebromedullary shunts because that is where CSF is pushing on our brain stems, but those shunts are really high risk, I’m afraid. My son and I were lucky in that Diamox was enough for us — and the radiologist even called my compressed spinal cord “atrophy”. I was VERY symptomatic. It was so tough to walk away from the suggested shunt. But with my son and I, we were triggered by viruses, so I was hoping we wouldn’t need something permanent. Praise God above, my instincts proved to be right for us. Have you chatted with IIH folks on the forums to see if they have any advice for you? Hang in, my friend. Big hug…

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020