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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Pain management

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Pain › Pain management › Reply To: Pain management

June 10, 2013 at 1:17 pm #3738
Dr. Diana
Keymaster

Hi, Although pain hasn’t been a huge issue for me until my shoulders “went”, I know that a lot of us are on Cymbalta. Dr.McDonnell will often go up to 120mg/day for EDS — twice the recommended dose. It has a bit of a mood-lifter, too, which can’t be all bad! I have a TENS machine, but I ended up using it more as a distraction for the kids’ “growing pains” than anything else! I’ve never gone to narcotics (I hate the way they make me feel), but know plenty of folks who swear by them. I know of a piano player who wore a gazillion morphine patches on his body and continued to play the piano professionally until the day he died. Amazing! I tried Normast (it hits the same receptors as marijuana, but without the “high”. I never noticed a difference! Massage helps me more than most anything, I think (that and distraction with music — as you likely know!). 😉

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