I have not asked my pain management doctor yet for more pain control, but I may have to soon. I think he worried that I am only 37 and I will be on pain management for life. I actually saw him today and I told him about having been clinically diagnosed with EDS. He knew what it is and said he has several patients with it. He did suggest I go to a group counseling session for pain distraction. He thought it might help so I don’t feel so alone. Have you done this? I already try to distract myself, but there are times when I am totally miserable. Those times are more frequent than not.