I have the same problem. It hurts no matter what, and that is the most frustrating thing about it! I will try to find one of the pillows everyone uses. I have tried the heat and cold too, but all it seems to do is create a distraction. I hate that it wont let up. I too am trying to stay ambulatory. I know I will one day be in a wheel chair too. It is hard when your body is falling apart.