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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Pain management

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Pain › Pain management › Reply To: Pain management

June 11, 2013 at 6:27 pm #3762
Barbara
Participant

I take Adcal D3 (effervescent) night and morning and, although over these last few years my level has improved and it’s a while since it was tested, I guess it is still at the low end of normal, as I still have stinging bone pain.

Yes it’s so sad you’ve had to suffer all these years, you do get to a stage where you think, ‘what’s the point?’ as far as doctors are concerned. I don’t get it, to become a doctor you need a higher level of intelligence and a certain level of ‘staying power’ to undergo such lengthy training in the first place, yet having achieved this accolade of worthiness, when faced with a complex case, difficult to unravel, many of them just can’t be bothered – have they used up all of their conscientiousness during their training, or is there just no incentive for them to deal with it ? They get paid anyway and they get paid well enough, it’s a pity their pay is not performance related, now that would sort out the real wheat from the chaff. What happened to all the ‘House MD’s’ of this world ?

For now, we have to be our own advocates and Look, Listen and Learn, as they used to say at school. No doubt you will have developed coping mechanisms along the way, like many of us, that have helped you get by, we all need to share these and read, as others publicise theirs and make the necessary adjustments to lifestyle for maximum comfort.

I know it’s so difficult when you’ve children to look after and my heart goes out to all of you in this position. So, if this is you, try and get your children involved, look for little ways to make chores fun, like see who can pair the most socks and silly stuff like that, or something they may be curious about or like doing, like ‘weighing’ out the ingredients for a cake, or rewarding, like once they’ve changed their bedding they can make a fancy ice-cream sundae, etc. If you can ‘offload’ some of the menial energy consuming tasks, so all you are doing is supervising, hey your kids are learning to look after themselves and you are getting (a little more) rest.
Barbara
(UK)

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