Oh, I also found that B12 helps with pain! Some pain doctors inject B12 into the joint (ouch). I prefer to keep my levels up systemically. 😉 This is expensive and not yet in the EDS literature (but it is in the fibromyalgia literature). Human growth hormone helps me. I started it 10 years ago as sort of an experiment to see if I could keep from falling apart at menopause, as I heard so many of us did. I kept my levels at the upper end of normal. I didn’t realize it was doing anything until I went on a trip for 12 days and didn’t pack it. OMG. After about a week, the pain in my back was horrible. Ironically, I was at the EDS conference and couldn’t even sit still. Needless to say, I went back on it as soon as I got home! You may want to have your levels checked. Thanks and hang in!
Which level do I need to get checked? I take B12 and B complex and I do notice they help some. I started taking them because I take Metformin for poly cystic ovarian disease. Metformin raises homocysteine levels and lower B vitamins absorption. Plus I take Nexium, Zantac, and tums because I have severe GERD. They interfere with absorption too. Therefore, I have no idea if my levels are still normal or not. At one time my doctor checked and my B12 levels were too high. At least according to her. Can you have too high of a level when you are suppose to excrete the excess in your urine? With the HGH how to you take it? A long time ago I had my levels checked and they were at the low end of normal. I don’t know much about it? What does it do to help and how do I take it? How much is it? Which one did you forget to take on your trip? On I side note I have always had hormone problems. I get migraines and my pain is always worst right before my cycle. For example I felt better while pregnant in someways. Especially with my moods. I still take a lose dose progesterone only BCP to regulate my cycle and help with the homonal drop before my period. It does not help as much as I would like, but it helps with the migraines.