I’m just wondering does anyone know if Addison’s disease and/or pseudotumor cerebri are linked to EDS or common in EDS patients? Ik pseudotumor cerebri is common in EDS patients but is Addison disease connected to pseudotumor cerebri or EDS type 3 it’s self?
Hi Jrl_3327, I don’t think anything is in the journals yet, but I’m working on it! If you’ve heard of The Driscoll Theory, you know that I strongly believe (and our family has experienced) the hydrocephalus also known as pseudotumor cerebri. You can find some of my videos on Diamox and External Communicating Hydrocephalus on my site. Please check the out! My hypothalamus isn’t worth a darn any more, and I believe I’ve come close to an Addison’s crisis in the past. No one knows if our squashed pituitaries are related to this or not. Is your cortisol and ACTH in the dumper like mine is? Your doctor can run a stimulation test to see if your adrenals, or pituitary, or hypothalamus are to blame. Let us know? 😉