• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Does Addison disease have any connection with EDS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Does Addison disease have any connection with EDS › Reply To: Does Addison disease have any connection with EDS

July 10, 2013 at 7:53 am #3888
Jrl_3327
Participant

Hi I just got an order for blood work to be done yesterday from my pcp. I have an appt next wed. with a endocrinologist. Back in July 2011 I had my carpel tunnel Dr tell me he wouldn’t perform my surgery bc he tought I had something else going on besides carpel tunnel such as Addison.. nothing else was ever mention about it again until this past week. Its been proven that I do have the pseudotumor cerebri and the diamox zyrtec and zantac have all help tremendously as long as I don’t allow myself to get to acidic. Thanks to u on that Dr. D.. but I just all of the sudden have gotten so fatigued the past month no motavation what so ever and if I could I would sleep 24hr it seems along with no appetite at all the feeling of nausea and vomiting and left back & abdominal pain worse than my normal ha!. So I mentioned this to my pcp and also mentioned how my scars have went from white to brown, how my gums have even went from pink to dark brown all over time and he said it sounds like Addison’s. He gave me a dose some kind of cortisol steriod through my vein with saline after. And within 10 min I could actually stand up straight which I haven’t been able to do in a very long time. He just didn’t explain how long will that steriod last and also now that I got the medicine in me when I go get my blood drawn today will it be thrown off. Should my blood have been taken 1st or will it not matter for the blood test results? Ik my sodium has always been low I’m told to add salt to my diet but the problem is I can’t eat I’m I am now 7lb lighter than Iwas 3wks ago. I will keep u posted after I see the endocrinologist next week & see if I get some more answers!
Thanks Jamie:)

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020