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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: muscle spasms?????

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › muscle spasms????? › Reply To: muscle spasms?????

October 9, 2011 at 6:13 am #1521
bearcat
Participant

oh owww… hugs for also likely having chiari…

though I’m wondering… (but I dont really understand these things v well… so it is really just ‘wondering’ )- the ‘when swelling/muscle tightness is there= no autonomic probs, swelling/tightness gone=autonomic probs come back”… I’m wondering whether rather than ‘true chiari’ you might have craniocervical instability??? (or …maybe you are cursed with having both???)

the only things I know of that can be helpful with craniocervical instability are to have v good working core muscles in your neck and special neck braces
hope you will find out if it’s chiari/c c instability and hopefully someone will be able to help you with these things-
one american surgeon that seems best informed about EDS/chiari/cranio… (he works closely with dr. francomano) is a mr. fraser henderson.
xxg

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