Bearcat…posture? can’t say it’s the best, although I do try to make a conscious effort. I’ve tried gentle exercising/stretching, seems like by the next day though it makes it worse. I also have loss of “lordotic curve” my cervical spine is completely straight, which would also explain why maybe I have,or what looks to be like, Chiari 5mm, i think due to my spine being straight it make it easier for the cerebellar tonsils to come down, put pressure on everything, and cause these muscle issues over & over again. You know what’s strange though….. when this outrageous pain/swelling is in my neck/shoulders…I have very little autonomic stuff goin on, then like clockwork doc gives me prednisone, which i believe reduces the swelling & within 2-3 days the autonomic symptoms come back with a vengence!!!! I started thinkin maybe(in my case) i could live with this pain,it’s horrible pain BUT, I’d rather be in pain then deal with the autonomic symptoms(I completely shut down)… maybe the swelling “holds up my head” to the point where my brain is no longer resting on my brainstem……. thoughts anyone????
Hon, did you try Diamox in the evening for that horrible pain? I, too have the straight neck (the doc called it a “military neck”), but I was still able to get rid of 97.35% (ha) of the pain with Diamox alone. Prednisone may be activating your mast cells, and this can increase your intracranial pressure (Part 2 coming soon), pushing your brainstem and Chiari down just a bit… Just my 2 cents, my friend. Please let me know about the possiblility of an evening trial of Diamox for you! Fingers crossed. 🙂