This does make sense with the prednisone causing mast cell bc I had surgery on an arachoid cyst in my spine ( which we think was causing my leg pain, numbness and tingling 2 years ago) which then filled back up 3 months later… Then they thought they saw a lesion on t11 and did a spinal tap which showed I had obands….but no other lesions…this actually happened before I had the surgery. So after surgery suggested I had MS. I went to shands…they weren’t sure. USF who said I did, but neurosugerons did not think I did. So I didn’t end up taking meds for MS, but I did take I dose of IV steroids and a couple months later is when I started feeling loose and everything cracking and popping and hair started falling out.. This started 2 years ago. But I did have horrible neck pain for the last 6 years and my neck is straight and twisted. I have had mild scoliosis since the 7 th grade ( I am now 35). But it has gotten worse since the last 6 years or so. I don’t know if bc that is when I started going to chiro and I know they are not good for us…didn’t know I had this till a year ago. So I understand where mast cell makes sense, but I don’t have any allergies. I definitely do get the pressure thing. And I do have that cyst blocking fluid too. It’s weird when my neck hurts the rest of my body seems better then my middle back will hurt then my low back will hurt and my legs will have more symptoms. It feels like my spinal fluid is stuck or really pressured at the spot that it hurts…I don’t know if that makes sense. I have researched ccsvi since Oct. 2009 and had an ultrasound done and it only showed valve problems. I didn’t do anything about it bc I have heard all different about fixing valves. I even did the first or maybe second walk and roll ccsvi walk with dr. Dake in Tampa. I totally believe in it. And can’t wait till they get more info.
I sent you an email about a week ago dr. Diane, but I know you r busy so you might not have read it yet. It explains my whole Story better ;). Thanks for all u do!!!!!!