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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

November 15, 2011 at 4:08 am #1589
loulou
Participant

Yes I have this pain and am being looked into re CSF. I have EDS (with marfan habitus) and pots too.

I get horrendous headaches when I sit or stand, cough or sneeze and since March this year I am having terrible hearing issues – hyperaccusis, tinnitus, muffled hearing and deafness with my headaches. Seeing a neuro in 2 weeks.