NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?
Yes I have this pain and am being looked into re CSF. I have EDS (with marfan habitus) and pots too.
I get horrendous headaches when I sit or stand, cough or sneeze and since March this year I am having terrible hearing issues – hyperaccusis, tinnitus, muffled hearing and deafness with my headaches. Seeing a neuro in 2 weeks.
Hi Loulou, those are classic symptoms of high intracranial pressure. Neuros love to do LP’s to “prove” it, but see if your doc will let you go on Diamox for a few days instead (for reasons to try to avoid an LP, please see The Driscoll Theory. 🙂