NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?
I have been diagnosed with Chiari 0 Malformation with 3mm herniation. Obviously I don’t fit the 5mm criteria for Type 1. I started taking Diamox and became violently ill. I also had a moment where I ended up driving to McDonald’s to get breakfast but when I got to class I had no recollection of stopping off at McDonald’s. I also have no idea what McDonald’s I went to. I literally felt like I was outside my body for 2 days after only taking one dose.
Is there another alternative drug that has the same or similar effects? We discussed that my herniation is possibly a result of hydrocephalus and the pressure pushing down on my brain.
I have neck pain all the time that radiates to my shoulder blades. I also have issues changing postures. Lying down is comfortable for a little and then the pain comes back. However, when I sit up I feel like I am going to faint. (I do have Neurocardiogenic Syncope but have triggers that I am able to control).
Not sure where to go from here. My doctor does not want me to continue taking Diamox, and I don’t really want to consider decompression surgery just yet.