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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Left ventricular diastolic dysfunction

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Cardiology › Left ventricular diastolic dysfunction › Reply To: Left ventricular diastolic dysfunction

December 4, 2011 at 6:41 pm #1598
SweetFeather
Participant

This post was very timely for me and a good warning for all of us. You can have POTS AND some other heart problem!

I finally got confirmation my thirteen year old son’s inattentive ADD is actually probably POTS which I’ve suspected since I was diagnosed by tilt table with POTS. I’ve had the nurses at our clinic test his pulse standing at least three times since he spontaneously vomited during a poor man’s tilt I gave him but his heart rate was normal every time the nurses took it. (The longest they would wait is 12 minutes) My blood pressure cuff would go to “error” on him so I couldn’t prove his pulse was sometimes high but I noticed he’d turn pale when singing at a concert and his teacher’s commented he’s been increasingly inattentive at school. He’s also been complaining of back pain in his left kidney area for 7 weeks and he’d been diagnosed with a muscle strain but I didn’t believe that because it was coming and going and he’s been increasingly fatigued.

I KNEW something was going on with him, and I suspected POTS, but I couldn’t prove it so I bought an iPhone with a Garmin chest strap and a Digifit connect 2 and Digifit iCardio to turn my phone into a heart monitor. He carried the phone in his cargo pants pocket for half a day. I was shocked by the results.

I took him to the clinic with a print out of the results and I finally got our doctor to believe me something was going on! Well… his EKG showed abnormal P waves and his heart rate ranged from 59 to 128 while lying down having the test. He’s going to a pediatric cardiologist in a couple of days. I am really worried because while I have POTS, I’ve never had any abnormal heart or chest tests (EKG’s, echos, Chest MRI’s and Sono’s).

Anyone else have an EKG with inverted P waves or ectopic atrial tachycardia?
Thanks, SweetFeather

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