I have similar questions, as the Coke *really* throws me off!!! I can toss out guesses all day long, but honestly, I see some imaging in your future! BTW, “usually” suspected clots should be evaluated fairly urgently because the window for treatment is so narrow. Veeeeeeerrrry interesting! 😉
Okay, well I literally just got home from getting my ankle and foot x-rayed. I guess depending on the results, perhaps an ultrasound or MRI is next?
Dr. Diana, I have a rheumatologist willing to send me for whatever testing I need. Can you please help me? He wants angiograms of my brain and heart. What do I need to test for CCSVI? Angiogram of neck? Please advise of any testing you think I should get. Many thanks.
My GP has no knowledge of EDS. She is trying her best and reading up on it. Can she email you through the medical professional part of your contacts?