Welcome to the wonderful practice of doctors. My primary doctor is okay, meaning ,I do all the research ,bring in the results and she writes the prescription. My cardiologist was a moron who after having allergic reactions to 2 different beta blockers decided there was nothing more he could do to help and that I should drink more water and not have caffeine, which I drink about 100oz of water or more a day and do not have caffeine. My heart rate was 170 and I was crying on the phone with the nurse because the good doc would not even schedule me an appointment. The very best doctor with thorough knowledge and excellent bedside manner was….wait for it…. a podiatrist! Yes, a foot doctor, looked at my purple feet and said ”you need to get your heart checked”. Maybe you already know this but in case you don’t here is the truth, if a ”doctor” cannot sell you prescriptions he cannot keep you coming back in and thus cannot keep you as a patient because you are not a profit. Medicine in this day in age is money unless you can find a rare doctor who actually went into to medicine to help. I am going to start reciting their pledge to “do no harm”. In not treating, or in your case, withholding any information, you are in fact doing harm. Honey, you have to be the one fighting for you, spending countless hours reading things you may not even understand, and then looking up those things and reading forums to find information. It seems like you are but to anyone else reading this please take this to note. Your doctor doesn’t live in your body, he will never know how it feels to be you, he will never go home thinking about your suffering, you have to be your own doctor and present what you find, you have to fight for you. Many hugs to us all. May we all find what works for us. 🙂