• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: I Got Me Some Raw Dam Data…

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › I Got Me Some Raw Dam Data… › Reply To: I Got Me Some Raw Dam Data…

October 1, 2014 at 9:28 pm #5050
dino68
Participant

Mog the Dog, I have been having constant vertigo for years. I have spent tons of time reading about it and going to doctors including neurotologists. I am going to do some reading on platelet vertigo. I did read somewhere that an aspirin a day might help and have tried that along with about 100 different things. I do have factor V Leiden, so maybe the antiplatelet therapy will help me. I will definitely give it a try. What medicine are you taking? I also have been having strange vision problems where my prescription changes weekly and I have pain pretty much all over but both of these could be from EDS. Also, I have a PICC line and now that I have an infection and have to take antibiotics twice a day it keeps clotting off even though I flush it with heparin. The nurse does not understand why it keeps happening. My blood work has been off too with worsening neutropenia and anemia along with a lot of other things, but I had a normal bone marrow biopsy.

My MTHFR genes were both normal and I have the POTS, EDS and MCAD. There were some other ones that were off like the COMT genes where I was homozygous on a couple of these and they have to do with how you process catecholamines and my levels were over 2000, so I wasn’t surprised to have abnormal genes here, especially since several people in my family have hyperadrenergic dysautonomia.

I am going to go take another baby aspirin just in case it helps my vestibular problems. As much as I have been lying around lately and with the factor V and family history of blood clots,, I should probably be taking an antiplatelet drug anyway.

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020