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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

January 2, 2012 at 4:34 pm #1630
PalominoMorgan
Participant

I have a tractor trailer full of issues and per Dr Francomano my skin is not very stretchy at all. I have had college coaches, doctors, massage therapists, and PT’s tell me though that I have somany knots and so much tension in my muscles, especially neck and back, it’d be easier to massage a door than mt back. My PCP has commented that she can see the muscle tightness in my neck from across the room. I have lived like this for as long as I can remember. I assume there was a time I didn’t live with muscle tightness but I don’t remember it. EDS presents differently in all of us, even in the same family.

I have found the most relief from my current PT who uses cranial sacral massage techniques. I would encourage you to try to find a PT, osteopath, or massage therapist who uses the same who can evaluate your daughter’s body mechanics. The tiniest things can make a huge difference.

I would also encourage you to listen to your gut. Mom’s are usually right.

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