• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Intracranial HYPOtension and ctd… Question

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Intracranial HYPOtension and ctd… Question › Reply To: Intracranial HYPOtension and ctd… Question

January 27, 2015 at 2:23 pm #5271
Dr. Diana
Keymaster

Please be sure you and your doctors have ruled out the other reasons for Diamox failure, OK? I have them all listed under “Diamox Pearls” in the book. I can’t tell you how many folks thought Diamox wasn’t working for them, only to realize that it wasn’t prescribed correctly (the wrong form, the wrong dose, their CO2 was too low, etc). The only other reason I’ve seen for it to not be effective is if the pressure is just too high for Diamox to make a significant dent. This happened to me recently (when I got out of the hospital). My pressure was clearly high (I felt like my ear drums were going to explode!), but Diamox didn’t make a difference for a while. As my inflammation calmed down, the pressure reduced, Diamox was then able to make the difference for me. Finally! Another thing that may help you figure out if your pressure is truly low is to look at your head circumferences in the first 18 months of life, should you have those. If you are prone to high ICP, your head circumference should grow too fast, when compared to your weight and height. It’s not a guarantee, but can suggest a tendency to have high pressure. Does that make sense? If your pressure is indeed low, I wonder what your doctors are proposing to do to help you? Do they have any ideas? 😉

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020