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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Absent obvious causes, how indicative is an empty sella turcica of intracranial hypertension?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Absent obvious causes, how indicative is an empty sella turcica of intracranial hypertension? › Reply To: Absent obvious causes, how indicative is an empty sella turcica of intracranial hypertension?

April 2, 2015 at 9:40 am #5418
Dr. Diana
Keymaster

I learned that the experts do NOT consider an empty sella a problem without a high reading with a lumbar puncture. I remember discussing this with the neurologist at Mayo. He said that 6% of “normals” will also display an empty or partially empty sella. I countered that perhaps they should reconsider, if I had EVERY SYMPTOM of high ICP along with that partially empty sella? (doesn’t that make sense? I mean, really…). I think you know from the book about our tendency to develop chronic leaks from lumbar punctures, so I wasn’t going to let them do that just to prove my point! Instead, my kids and I responded beautifully to Diamox. Although we no longer need Diamox, it was a life-saver for a couple of years! 🙂

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