No diagnosis of POTS yet. I know that I had a dizzy spell the other day, I mentioned it to my doc office online. The next day when I wasn’t feeling dizzy, the PA told me to check BP laying sitting and standing. It did drop sitting and standing but only 20 points. I can remember almost blacking out a lot upon standing when I was younger many many times. Even losing full sight one time for a few minutes but not losing consciousness. I think I did kind of lose consciousness a few times when I was alone with my children. I remember going down, holding on to the bathroom door and I could hear my kids who were standing by me, but there voices sounded far away and it was like I was completely out of it. That was frightening because they were very young. I’m about to get on a plane in a couple of hours and I will have to medicate so that I don’t get sick with stomach issues. Flew for years without problems and now I can’t. And I love to fly. I had a brain MRI around 9 or 10 years ago. I had one last year. I have a CD of the one I had back then. I think I want to see if I can get a copy of the one I had last year and compare them, if I’m allowed to get the last one. Doc said that the small vessel disease would not cause all the pressure in my head, down into my spine. No one can tell me why. Still not sure why I’m having vision problems if my eyes are OK. I told my eye doc about you and she has been doing some research on your site. She is very interested in these problems. Also, someone else in her office is doing the same. I am educating my PCP on this too. He is a family doc, and treats some of my grandkids. I showed him a pic of one of our twin girls that appears to have signs of EDS. The other twin and her brother have had slow development, and problems with hearing and sight. My kids all have had some problems too. My youngest wasn’t able to fight off viruses and had to have gamma shots for 2 years. My daughter, I’m pretty sure has Lupus, but doesn’t have insurance so she has never been diagnosed. I have had 2 ANA tests come back positive a few years ago, but now they are negative. Then all the problems with my husband and his family and no diagnosis is unbelievable. So I’m thinking we will have to go out of the state to find docs.