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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: POTS probable?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › POTS probable? › Reply To: POTS probable?

November 25, 2015 at 11:39 pm #5728
cgmusaf
Participant

The Dr replied and this is what I understand it to mean: They don’t diagnose PoTS based on a starting resting heart rate. They take a baseline at any time during the other tests done while you are lying flat. They then incline the table for 10min and see if you’ve increased by 30bpm by the end of it.

———-
Quoted:
“That HR was your HR while resting supine. A HR in the 60s to 70s is within the range of normal variability, most patient’s HRs are elevated from stress during the testing. We always use the change in HR, not the absolute HR, to diagnose POTS.”
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Sounds ridiculous to me, but I’m just a patient…is this being done right Dr. Diana? So if I got on the table with a 120 heart rate, would I then hit 150 at the end of the incline?

All of this is more of a curiosity at this point since I think my military Dr. will take the results and say I have PoTS…since I DO meet all criteria for it.

This Stanford doctor seems intent on me having vasovagal syncope however:

———-
Quoted:
“Is there a reason you are especially concerned about not being diagnosed with POTS? The good thing is that the medications we use for severe vasovagal and syncope and very similar, so you should not have to circle back. Thank you for brining the tremors again to my attention.”
———-

Everything I’ve seen on vasovagal syncope says either my BP should drop or my pulse or both… But my BP stays steady while my heart rate climbs until I pass out…why would he be thinking vasovagal after seeing my tilt test? I was diagnosed with it years ago but he’s seen what my body does at this point, there’s no indication of vasovagal at all. Thinking about this now…vasovagal is supposed to be a lifelong condition right? Would PoTS override the vasovagal response? Or did I really never have vasovagal to begin with? If that’s the case, I’ve had PoTS much longer than I originally thought…

I continue to think this doctor either doesn’t know what he’s doing or he simply wants to milk the military for tests…

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