• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Zantac for those with low stomach acid

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Zantac for those with low stomach acid › Reply To: Zantac for those with low stomach acid

January 27, 2016 at 11:30 am #5817
skboren
Participant

Thank you, Dr. Diana!
I managed to get an Rx for Diamox from a neuroopthamologist yesterday. He doesn’t think it will do anything at all, but he said 250mg 2x/day is innocuous so he’d go ahead and write the script. I’m hoping it will help. I have something serious going on that is acting like ALS. MS has been ruled out. But I’ve had the characteristic headache you describe for 5.5 years, and in 2014 I developed venous pooling in my limbs making them purple and painful unless I’m moving around. This year I developed fasciculations all over, followed by progressive weakness (most predominantly in the left leg where my worst venous pooling is) so that I shake when I try to use my hands, I type poorly, have a hard time using my phone, can no longer play the piano, drive, or walk normally. My tongue is progressively weaker so that I choke and have a hard time making certain speech sounds, my speech gets muddy. At night I have to sleep at a 45 degree incline or else I wake up with my body vibrating, or useless weak limbs so that I fall when I try to get up, or a feeling of suffocation. I have a 1.8cm cyst on my pineal gland that I am suspecting may be blocking the great cerebral vein (vein of Galen) and causing issues, so I am scheduling surgery to have it removed. But I’m scared out of my mind because I have no idea if the $30,000 surgery will resolve anything – I’ve been told conflicting things by neurologists and neurosurgeons. We’re also looking into CCSVI at a facility in LA. But in the meantime I’ll just try the Diamox, etc. and see if it makes any changes. Thank you for your help!

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020