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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Zantac for those with low stomach acid

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Zantac for those with low stomach acid › Reply To: Zantac for those with low stomach acid

January 27, 2016 at 6:00 pm #5818
Dr. Diana
Keymaster

I’m so sorry you are dealing with so much… 🙁 I don’t know if you have ALS, of course, but I will tell you that it is something most of us fear when we are so dramatically ill (including myself). But ALS was ruled out immediately — although I was incredibly ill, my balance was not significantly altered. Balance problems are often times the first symptoms of ALS — patients aren’t necessarily that ill (like many of us), but stumble around almost appearing drunk to the outside world. Although it wasn’t an answer for me as to what WAS wrong with me, getting the ALS monkey off of my back was helpful. I hope someone can give you an answer for that soon. Concerning CCSVI, you know we’ve been there, right? We did not find treatment to be of any benefit, but it is high risk (death from the heparin used to control post-treatment clotting). I do think that when folks did notice improvement in some symptoms (brain fog, circulation for example), it may have been the heparin that they were responding to (as opposed to the dilation of the vessel). Instead, I came to understand that most of us need systemic treatment. Our problems were not limited to one or two vessels, unfortunately. You are the second person I’ve heard from with a pineal cyst lately. I hope you get some relief soon. Big hug,

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