I can’t thank you enough for your input, PalominoMorgan! That is exactly what I have needed. And that has been the problem when seeing other docs, like when I saw my new ophthalmologist and neurologist. Without having a confirmed dx, they give you the “look” if you suggest the possibility of something such as EDS. She has mentioned sending me to a rheumatologist. I’m thinking if I can get EDS dx’d, I would be in a better position to suggest a cardiologist for possible dysautonomia.
So, then, one more question, if you don’t mind, what doc would dx EDS, or would it be my pcp? Thank you again so much