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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: POTS for dummies help–newbie

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › POTS for dummies help–newbie › Reply To: POTS for dummies help–newbie

February 20, 2016 at 11:46 am #5875
Dr. Diana
Keymaster

I understand how difficult this journey can be to diagnosis and treatment. There are so many things that can contribute to POTS, I don’t think anyone would be comfortable trying to provide a quick list… Having said that, after checking for heart abnormalities, pheochromocytoma and often carcinoid cancer (blood/urine tests), I like to see a QSART test to check for autoimmune autonomic gangliopathy. That is the one condition we don’t see at POTS Care because it requires ongoing immunosuppressives and experts in autoimmunity are important for those patients. Others fall into “idiopathic POTS” and usually pass a QSART (after ruling out other causes of neuropathy that are not autoimmune). Those are the folks we like to see at POTS Care. Hang in, my friend.

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